Yesterday as the car was coming to pick us up to go to Mass General, I simply grabbed my 10# oxygen tank, walked down the stairs, and out the front door. It was only later that I noticed that I was not out of breath. Carrie caught it right away though.
I successfully unloaded the dishwasher on Monday morning, with the help of a grabber tool from the OT.
I have new PT exercises that are more directly related to muscle strength for walking.
I left the apartment twice yesterday, once for medical appointments in the afternoon, and once in the evening for a reading and party at Radcliffe. So I scaled the apartment stairs twice — once for each return. Following my PT’s advice I stop twice on the way up instead of once. Makes it way easier.
(I did take a late afternoon disco nap to make it through the evening outing — the fatigue is still a real thing.)
At the appointment yesterday, the nurse practitioner said I “looked better”. My blood numbers for nutrition (I am only eating real food now) were also better. I am still somehow losing weight. Side effects are still there but mostly under control.
I feel like every medical question is answered with a referral to another medical professional and more appointments. I don’t really want more appointments, except for intellectual and social appointments.
We met with a social worker who will give me some options should I need to hire people for help with independent living in January, assuming things continue to progress. They also have a peer mentor program I’m going to check out.
I ate a tiny bit of normal pizza last night. It was divine. I do have a few gas pains this AM. Cheese.
The roller for the oxygen tank works well and the longer tubing solves the “gentle leader” problems.
I am still getting the hang of socializing in group settings where people are standing and walking around and I mostly need to be sitting.
