Taking it on the road

Things are relatively stable here in Lenvimaville. After being “grounded” in Montreal from February through May, I finally got back on the road at the end of the month. First, I flew to Aarhus for a seminar at the Center for Sound Studies (BECAUSE OF COURSE THEY HAVE A CENTER FOR SOUND STUDIES) and then […]

7 is a lucky number/WTF is thyroglobulin and why is it a tumour marker/didn’t want to be “that guy” at the Broken Social Scene Show

Good news!  My tumour marker keep dropping.  It is down to 7.  That’s pretty amazing given where I started out.  It’s not the absolute numbers that matter, but the relative numbers that do.  If the numbers doubled in a short period, my doctors would be worried.  So that I’m down from 45 is a very […]

On the side effects of treatments for my side effects

I sometimes like to think of my current condition as “shitty puberty.” Not that puberty is a fun ride for anyone, but this experience seems like a cut-rate version. Instead of well thought out, illustrated “what’s happening to my body?” books and parents talking to me about things I don’t want to hear about, plus […]

Of Nouns and Pain

I am way overdue for an update and there are multiple posts to be made. Today’s topic is in the header. First: no tumour marker news. The cancer centre at Jewish General was a mad house yesterday* and the blood tech somehow forgot to do a test for thyroglobulin. It’ll likely be another two weeks […]

Foggy Middle

So we enter week six and things are a little unstable. The good news–very good news–is that my tumour marker is down to 10, from over 40 when I started. The bad news is that the hand pain hasn’t abated. It’s different from day to day and I seem to have good days and bad […]