Cancer Crawl 23 Feb 2025
Sorry for the radio silence. It may go on like this for a bit. Weds (T-2) was fabulous. My talk went off very, I got lots of great feedback and questions. It was perhaps TOTALLY INSANE to give the talk on day 2 of radiation but it worked out great. And I am so relieved to have done if before symptoms set in.
But boy did they set in. Thursday and Friday featured double helpings of puking, probably from the dementia meds, which made me very weak. Over the weekend we experimented and I am hoping I can skip those and stay on the steroids. I wouldn’t call myself perky but I am no longer weak.
The other thing is the fatigue kicked in. I just awoke from my second nap of the day, this one 3 hours. The radiation oncologist warned me about brain fatigue–it and the liver are the worst organs for radiation fatigue. And holy shit was he right. All I can do is rest and not a whole lot else.
On top of that I have some weird symptoms that may be radiotherapy or immunotherapy related like a numb thumb. No way to tell the proper cause. And really annoying for typing as you might imagine.
I will try and post again later in the week but frequency will have to be dictated by ability. I am at least pain free, and able to move when I’m motivated. And I don’t really have to do anything except get through this, so wish me bon courage. I am working on being the least interesting version of myself. Carrie has been keeping me upright (only when needed) and helping me through the difficult parts.