(Good news post coming Monday, music post on Wednesday.) Just to keep this story going: I finished my 5 doses of external beam radiation on Monday the 27th. Apart from wondering whether the itching I felt was normal itching vs radiation itching (hard to tell) there was no pain or discomfort. They say it takes …
Category Archives: Cancer
Cancer and Concussion Crawl, 24 April 2024
If you’re just joining the show in progress, I’ve been on a tyrosine kinase inhibitor since 2019. It’s kept the spots in my lungs from growing, with side effects that the medical documents call “tolerable.” The good news it mostly works. The bad news is that it mostly works: one of the spots has decided …
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4 June 2023: Cancer Crawl
I’ve just completed a period of intense conferencing. Three in-person conferences in five weeks. Plus a number of Zoom talks on top of it. For me, it was wonderfully social and intellectual. In addition to getting to meet and see work by a new generation of grad students and assistant profs, whom I’d not “discovered” …
24 Feb 2023
Starter Pack I now have a starter pack I send to welcome BIPOC people, especially femmes, who are questioning whether they might be autistic, filled with essays, memes, hashtags, and online assessment tools. Many people with all kinds of disabilities are doing the same thing, even when we also pursue an official diagnosis—the first hints …
3 Feb 2023
Let’s get back to it. There’s catching up to do but in the meantime, I invite you to join me in the middle. Here are some thoughts from the past week. Reproducibility As part of my Interfaces seminar this term, I am having students do their projects around a process I called “hermeneutic reverse-engineering” (this …
Aaaand, some good news
The latest cancer update is that after this week’s CT scan, everything is steady and controlled, which is how it’s been for awhile. Sometimes I wonder if I should even keep doing these updates unless something goes south. Here’s where we are at. I’m on a kind of oral chemotherapy called a TKI. It works …
Mixed Pfeelings on the Pfizer Shot
So today I got the first Pfizer shot, and an appointment for the second one on my birthday in August. I’ll take it as a present. When I learned I was eligible Monday and called to make an appointment, it occasioned an actual adrenaline hit to my system. This morning, I woke up like a …