Since my last post, I’d say I’m living in a split reality. Every day there’s a little progress or something fun, but also every day some new fucking thing as the new chemo works its way through my body. When starting on lenvima I had a rule that a side effect wasn’t real if it …
Category Archives: Cancer
31 October 2024: Dark Night of the Soul
We all know the cliches: recovery is not linear. You cannot put a timeline on bodies. You don’t understand challenges of recovery until you experience them. It is one thing to know that intellectually and quite another to live it. Coming home has been hard—I have to do a lot more for myself and there …
28 October 2024: home!
At about 1pm today I was discharged from the hospital. With the help of the staff Carrie and I packed up and caught an Uber back to the apartment. I then very slowly, taking breaks, walked up the stairs and into my living room. There’s going to be a bunch of rehab ahead, but since …
Cancer Crawl 26 Oct 2024
A little more about high grade metastatic thyroid cancer of the lungs with a BRAF-600 mutation. Morphologically, it looks totally different under a microscope than papillary thyroid cancer. However, the oncologist I spoke with this morning describes every cancer as having an “engine.” If the engine runs on the same principles, then the targeted therapy …
Cancer Crawl 25 Oct 2024
A Provisional Diagnosis A lot sure changes in a couple days. We saw my local oncologist today and I now have a provisional diagnosis and a treatment plan: high grade metastatic thyroid cancer of the lungs with a BRAF-600 mutation. It is technically not anaplastic thyroid cancer but that may be a diagnostic distinction without …
Cancer Crawl 22 Oct 2024
First of all, I voted. I am in the cancer ward and I voted. Americans: you now have no excuse. Second, I’m thumb typing this entry. Wish me luck. Third, thanks for all your kind messages. I cannot keep up with all of them or give a customized account of my condition to everyone, so …
Definitely Cancer Crawl: 19 October 2024
I’m writing to you from the cancer ward at Mass General Brigham Hospital, where my local oncologist works. I’m currently on an intense Dilaudid and Ativan hangover so this won’t be the usual thoughtful post. However, I can tell you that today is the first day I have felt better than the previous day for …