I am thrilled to be home. Carrie is too. The cats have been getting a lot of petting for the last 46 hours or so. It was nice not to have a doctor’s office visit for six weeks–I barely remembered what that was like. I will see my onco this Thursday so I’m back on …
Continue reading “A brief medical evaluation of 6 weeks in Europe”
Things are relatively stable here in Lenvimaville. After being “grounded” in Montreal from February through May, I finally got back on the road at the end of the month. First, I flew to Aarhus for a seminar at the Center for Sound Studies (BECAUSE OF COURSE THEY HAVE A CENTER FOR SOUND STUDIES) and then …
Good news! My tumour marker keep dropping. It is down to 7. That’s pretty amazing given where I started out. It’s not the absolute numbers that matter, but the relative numbers that do. If the numbers doubled in a short period, my doctors would be worried. So that I’m down from 45 is a very …
I sometimes like to think of my current condition as “shitty puberty.” Not that puberty is a fun ride for anyone, but this experience seems like a cut-rate version. Instead of well thought out, illustrated “what’s happening to my body?” books and parents talking to me about things I don’t want to hear about, plus …
Continue reading “On the side effects of treatments for my side effects”
I am way overdue for an update and there are multiple posts to be made. Today’s topic is in the header. First: no tumour marker news. The cancer centre at Jewish General was a mad house yesterday* and the blood tech somehow forgot to do a test for thyroglobulin. It’ll likely be another two weeks …
So we enter week six and things are a little unstable. The good news–very good news–is that my tumour marker is down to 10, from over 40 when I started. The bad news is that the hand pain hasn’t abated. It’s different from day to day and I seem to have good days and bad …
So I appear to have the “hand” part of hand-foot syndrome. It’s a relatively mild case, as hand-foot syndrome can be so bad that it’s painful to touch anything with your hands or impossible to walk. In my case, it’s just in the hands. I’ve got the tight skin, tingling and burning, and extreme sensitivity …
Continue reading “Hypersensitivity Phenomenology, or Touch-and Learn with Hand-Foot Syndrome”
