A request before we get into the weeds with this post: I would be very curious to know from other chronically ill friends how you prepare for a debilitating “flare up” or “episode” when you are on your own. Over the years, I’ve learned a lot from years of watching Carrie deal with blood sugar …
Continue reading “29 Dec 2024 Cancer Crawl: shake it like you mean it, or not chillaxed”
“So what are you doing to distract yourself and stimulate your mind?” asked a friend on a recent Zoom call. My reply was “well, I’m rereading some classic cancer books.” Feel free to judge my mental health harshly, but it’s working for me. I’ve finished Audre Lorde’s Cancer Journals and Susan Sontag’s Illness as Metaphor. …
Continue reading “27 Dec Cancer Crawl: old cancer books: Susan Sontag Illness as Metaphor”
Tl;dr we got some good news, and we are waiting for a little more. This morning we awoke before dawn to get to the Mass General for an 8:30 appointment–first bloods, then nurse practitioner, then oncologist. (There’s probably a whole post in how I am now very slow in the morning compared to my former …
I hate Martin Heidegger but the one quote of his that I allow myself is as follows: “there is no such thing as an equipment”. (from Being and Time). It’s 21st century America. Cancer = consumerism. Time for some product reviews. Soundcore Sleep A20 Earbuds Beyond Carrie, actual treatment, and friends, I think these earbuds …
Yesterday was our first trip back to Mass General since my hospitalization. The place is truly massive. My oncologist here calls it The Mothership and that truly makes sense. I had to be wheeled around in a wheelchair because it would have been impossible for me to walk in my current condition. The first stop …
Since my last post, I’d say I’m living in a split reality. Every day there’s a little progress or something fun, but also every day some new fucking thing as the new chemo works its way through my body. When starting on lenvima I had a rule that a side effect wasn’t real if it …
At about 1pm today I was discharged from the hospital. With the help of the staff Carrie and I packed up and caught an Uber back to the apartment. I then very slowly, taking breaks, walked up the stairs and into my living room. There’s going to be a bunch of rehab ahead, but since …
