Tl;dr we got some good news, and we are waiting for a little more. This morning we awoke before dawn to get to the Mass General for an 8:30 appointment–first bloods, then nurse practitioner, then oncologist. (There’s probably a whole post in how I am now very slow in the morning compared to my former …
Category Archives: Text
Cancer Crawl: 14 November: The Gear Post
I hate Martin Heidegger but the one quote of his that I allow myself is as follows: “there is no such thing as an equipment”. (from Being and Time). It’s 21st century America. Cancer = consumerism. Time for some product reviews. Soundcore Sleep A20 Earbuds Beyond Carrie, actual treatment, and friends, I think these earbuds …
5 Nov 2024: A Visit to the Mothership
Yesterday was our first trip back to Mass General since my hospitalization. The place is truly massive. My oncologist here calls it The Mothership and that truly makes sense. I had to be wheeled around in a wheelchair because it would have been impossible for me to walk in my current condition. The first stop …
Cancer Crawl–3 Nov 2024
Since my last post, I’d say I’m living in a split reality. Every day there’s a little progress or something fun, but also every day some new fucking thing as the new chemo works its way through my body. When starting on lenvima I had a rule that a side effect wasn’t real if it …
28 October 2024: home!
At about 1pm today I was discharged from the hospital. With the help of the staff Carrie and I packed up and caught an Uber back to the apartment. I then very slowly, taking breaks, walked up the stairs and into my living room. There’s going to be a bunch of rehab ahead, but since …
Cancer Crawl 25 Oct 2024
A Provisional Diagnosis A lot sure changes in a couple days. We saw my local oncologist today and I now have a provisional diagnosis and a treatment plan: high grade metastatic thyroid cancer of the lungs with a BRAF-600 mutation. It is technically not anaplastic thyroid cancer but that may be a diagnostic distinction without …
Cancer Crawl 22 Oct 2024
First of all, I voted. I am in the cancer ward and I voted. Americans: you now have no excuse. Second, I’m thumb typing this entry. Wish me luck. Third, thanks for all your kind messages. I cannot keep up with all of them or give a customized account of my condition to everyone, so …